This is my first ever blog post so I thought I'd introduce myself and the purpose behind this blog.
So first the purpose:
I have been struggling with my illness recently and wanted a space to vent about it without unloading directly onto individual friends and family and stressing them out. This way if you want to know how things are going, you can come on here and see rather than me constantly whining at you. This isn't going to be all downhearted (I hope!), it will also be about my general thoughts about things, cute/inspiring/motivational things I come across and of course will be positive when things are going better. I will warn you now that it will, however, probably all be chronic-illness focused. I may mention things about my life, but it's important to me that this blog does not identify me if certain people go looking on the internet for more information about me, therefore I would appreciate if friends and family don't include my full name or anything identifying in any comments on here- thanks! If other CFS sufferers find this blog and it helps them feel less alone then that's great too :)
Secondly, about me (and my M.E.):I'm 21, have been ill for about 3 and a half years now and was diagnosed almost 3 years ago with 'Chronic Fatigue Syndrome' (also known as M.E.- Myalgic Encephalomyelitis). I also have asthma, but this is fairly well controlled now most of the time. To give you some idea, my current CFS symptoms include:
- fatigue (very different from normal-person-tiredness)
- pain (nerve, muscle and joint- nerve pain in my face and legs is particularly severe)
- weakness (reduced grip strength, leg weakness causes difficulty walking)
- muscle tightness on exertion (leading to muscle and tendon injuries from walking too far)
- changes in sensation (numb fingertips, fizzing/tingling feeling in my legs and face etc.)
- nausea (sometimes barely able to eat for days as a result)
- speech problems (difficulty finding words, get stuck on sounds)
- balance problems (particularly in crowds)
- difficulty being upright during relapses (can become impossible to sit up for long without feeling dizzy/passing out)
- difficulty recovering from infections (they often cause relapses in my CFS)
Despite my CFS I am continuing with my education, and am trying to retain something that vaguely resembles a social life. I try to stay positive, although some days that's harder than others, and believe that each day may not be better, but it is always one day closer to recovery.
..I think that'll do for blog post number 1! I'm not quite sure what I'm doing with Blogger, so bear with me while I work it out.. and do feel free to post questions or ideas for blog posts etc in the comments (anonymously if you wish). Thanks!