Thursday, 13 April 2017

FND Awareness Day 2017

Functional Neurological Disorder is a condition where your brain and body lose the ability to communicate. It's like having crossed wires. Your brain is talking in English, but your body only understands French, causing a lot of miscommunication. It's a complicated condition, and can be scary to suffer from, and frightening to watch someone battle.


People with FND can suffer from many, many different symptoms. These include: Weakness, Paralysis, Seizures (non-epileptic), Bladder and Bowel dysfunction, Co-ordination or Dexterity difficulties, Speech problems, Chronic Pain, Cognitive changes, Gait & Balance problems, Headaches & Migraines, Involuntary Movements, Sensory changes, Sleep disturbances and Visual changes. Basically anything that involves the nervous system can go wrong in FND.


FND is still fairly poorly understood, and patients don't always receive the medical help and support that they need and deserve. It can be a battle to access all the services needed to support recovery, and many patients experience some ignorant healthcare professionals along the way. Doctors who are specialist can be very helpful when trying to access things like physiotherapy and neuropsychology, and they can help to educate healthcare professionals and make useful suggestions in terms of medications, but specialists are unfortunately relatively uncommon, and it can be hard to access their help initially too.


In FND, there doesn't appear to be physical damage, it's more a problem with the messages and functioning. Physio and recovery generally, focuses on retraining the body, and trying to get the body and brain speaking the same language.


FND is a complex condition and recovery doesn't come easily. Some people, for whatever reasons, don't recover. Other people improve but only partially recover. Some do make a full recovery. For the best chance of recovery, patients need multidisciplinary input, but this is currently quite difficult to access, and healthcare professionals aren't always well educated on FND, so the help available isn't always ideal.


Unless someone has FND, or knows someone who does, they're unlikely to know much, or anything, about FND, despite the fact it is not rare. Because it's currently not well understood, many keep quiet about their diagnosis, as they don't think people will understand. Awareness is so important to bring attention to the condition, help sufferers feel better understood, and encourage services to offer better help for FND sufferers.


Today is our day to speak out.



4 comments:

  1. Hello, I was wondering if i could share the link to some of your posts on our ME awareness page on fb called WakeUp to the Problem. I know our followers would love to read your experiences and this would take them right to your blog. Either way just let me know. Thank you, Suzanne

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    Replies
    1. Yes, of course that's fine 😊 That would be great! If you could mention the blog's facebook page (fb.com/jesscfs) that would be even better! Thanks ☺️

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  2. Thanks so much!(((gentle hugs)))
    You can check out posts @wakeuptotheproblem.ME.CFS

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  3. Hi Jess' ME/CFS Team,

    My name is Anuj Agarwal. I'm Founder of Feedspot.

    I would like to personally congratulate you as your blog Jess' ME/CFS has been selected by our panelist as one of the Top 50 CFS Blogs on the web.

    https://blog.feedspot.com/cfs_blogs/

    I personally give you a high-five and want to thank you for your contribution to this world. This is the most comprehensive list of Top 50 CFS Blogs on the internet and I’m honored to have you as part of this!

    Also, you have the honor of displaying the badge on your blog.

    best,
    Anuj

    ReplyDelete